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Proposed NIH genetic testing registry lacks clarity, understates costs
Date:10/28/2011

e quality, utility and clarity of the information to be collected. AMP also recommended that the data fields be customized for each category of submitters as a way to minimize the burden of the collection of information.

"In general, AMP believes NIH should proceed with more caution and more forward-looking planning in order to design a truly useful Genetic Test Registry that isn't fraught with unintended consequences," said Williams.


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Contact: Don Hunt
dhunt@lambert-edwards.com
616-233-0500
Association for Molecular Pathology
Source:Eurekalert

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