Navigation Links
Perspective: Policies must keep pace with genetic progress
Date:6/19/2008

Enactment of the Genetic Information Nondiscrimination Act (GINA) of 2008 is a boon to individual patients and for genetic research, write Kathy Hudson, M.K. Holohan, and Francis Collins in the June 19 issue of the New England Journal of Medicine. But the bill is not a panacea, they note: Employers, health insurers, patients, and doctors now must be educated about its provisions, gaps remain in genetic testing oversight, and there still may be opportunities to misuse genetic information.

Hudson, director of the Pew Charitable Trusts-funded Genetics and Public Policy Center, and co-authors Holohan and Collins of the National Human Genome Research Institute, reflect on GINA's slow path through the legislative process. "When the first federal legislation to prevent the misuse of genetic information was introduced in 1995, many in the health care, research, and policy communities considered the measure forward-looking. Others called it premature," they write. Thirteen years later, they note, "With many of these tests becoming available in the clinic and some even being offered directly to consumers, GINA's protections could no longer be dismissed as premature; they were rapidly coming to seem essential to Americans' ability to make the most of the much-anticipated era of personalized medicine."

After spending years stalled in committees, GINA finally passed the House and Senate this spring with overwhelming bipartisan support, and was signed into law by President Bush on May 21. The bill prevents health insurers from denying coverage or setting premium rates based on genetic information, and employers from making hiring, firing, or promotion decisions based on a person's genes.

The authors quote Sen. Edward Kennedy, who called GINA "the first major new civil rights bill of the new century." Kennedy was one of the bill's lead sponsors. "Discrimination in health insurance and the fear of potential discrimination threaten both socie
'/>"/>

Contact: Shawna Williams
swilliams114@jhu.edu
202-663-5979
Genetics & Public Policy Center, Johns Hopkins University
Source:Eurekalert

0

GOOD

Page: 1 2

Related biology news :

1. Known genetic risk for Alzheimers in whites also places blacks at risk
2. Scientists confirm that parts of earliest genetic material may have come from the stars
3. Spradling receives Gruber Foundation Genetics Prize for new genetic techniques
4. Earthworm detectives provide genetic clues for dealing with soil pollution
5. Genetics of ALS progression
6. Genetic mutation associated with increased risk of lung cancer
7. Genetic variation linked to sugary food
8. Scientists dig deeper into the genetics of schizophrenia by evaluating microRNAs
9. Genetic tag team keeps cells on cycle
10. The cooperative view: New evidence suggests a symbiogenetic origin for the centrosome
11. Second genetic link to weight and obesity
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/10/2008)...on a previously unknown relationship between stem ...hondria a cell,s energy makers. Stem cells with mo...y to differentiate and are more likely to form tum...BC, could lead to methods of enriching the best st... may provide some insights into the role of stem c...
(Date:10/10/2008)...nvestigators from the Herman B Wells Center for Pe...of Medicine are focusing on a family of blood prot... toxic effects of chemotherapy in children and adu...evelopment of targeted therapies for leukemia, mul...The researchers, led by Kristin T. Chun, Ph.D., as...
(Date:10/10/2008)...Peninsula Medical School in Plymouth, UK, have car...derate exercise a day recommended to children from...sing problem of childhood obesity. , Their resea... the journal "Archives of Diseases in Childhood." ...ch has followed the development of over 200 childr...
(Date:10/10/2008)...ing the 1950s, Austrian and Swiss scientists condu...pal taking photographs of the glaciers, mountains ...ologist Fritz Mller spent eight months in the regi...otographing the Himalayan glaciers. , Now, fifty...n by these scientists are of immense value in tryi...
Breaking Biology News(10 mins):On the trail of a targeted therapy for blood cancers 2Recommendations for children's exercise lacking say experts 2'Himalaya -- Changing Landscapes' photo exhibition draws attention to the impacts of climate change 2'Himalaya -- Changing Landscapes' photo exhibition draws attention to the impacts of climate change 3NYU Medical Center Collaborates With Rosetta Genomics to Develop a microRNA Based Diagnostic Test for Melanoma 433 1NYU Medical Center Collaborates With Rosetta Genomics to Develop a microRNA Based Diagnostic Test for Melanoma 433 2NYU Medical Center Collaborates With Rosetta Genomics to Develop a microRNA Based Diagnostic Test for Melanoma 433 3NYU Medical Center Collaborates With Rosetta Genomics to Develop a microRNA Based Diagnostic Test for Melanoma 433 4NYU Medical Center Collaborates With Rosetta Genomics to Develop a microRNA Based Diagnostic Test for Melanoma 433 5China Technology Announces Entry to the Solar Energy Sector 431 1China Technology Announces Entry to the Solar Energy Sector 431 2China Technology Announces Entry to the Solar Energy Sector 431 3NuVasive to Host Investor Reception on September 11 2007 429 1NuVasive to Host Investor Reception on September 11 2007 429 2NuVasive to Host Investor Reception on September 11 2007 429 3NuVasive to Host Investor Reception on September 11 2007 429 4Microarray provides 3 genomic guides to breast cancer treatment decisions 750 1Microarray provides 3 genomic guides to breast cancer treatment decisions 750 2Microarray provides 3 genomic guides to breast cancer treatment decisions 750 3Microarray provides 3 genomic guides to breast cancer treatment decisions 750 4
...combination therapy drastically reduces the infect...ransplant patients with compromised immune systems... edition of Nature Medicine, originate from a stud...hodist Hospital, and Texas Children,s Hospital. ,...The phase 1 trial, funded by the National Heart, L...
...paint for a living may be placing their unborn chi...irth weight. , A study of construction workers in...ity of Alberta in Edmonton, Canada, links low birt...xposure to organic solvents such as paints, thinne...ry in its parent-reported assessment of birth outc...
...published study by investigators at the Center for...gno Rodríguez, MD, along with a nationwide team of...l thinking about the role of measurements of the a... predicting a patient,s ability to fight off the d...of JAMA (Journal of the American Medical Associati...
...ons in the receptor for a known inflammatory respo...isease and ulcerative colitis, according to a repo...chers in the October 26 online Science Express. , ...ly called inflammatory bowel disease (IBD), are ch...a and gastrointestinal bleeding and affect over on...
Other Biology News:Three-in-one virus killer prevents common, often fatal infections 2Solvent exposure linked to birth defects in babies of male painters 2AIDS study challenges conventional treatment guidelines for HIV patients 2AIDS study challenges conventional treatment guidelines for HIV patients 3Crohn's disease gene identified 2
(Date:10/9/2008)...o foot" dry adhesive got a new competitor this wee...rted in the journal Science by a team of researche...e long been interested in the ability of gecko liz...heir toes. The creatures owe this amazing ability...es that take advantage of atomic-scale attractive ...
(Date:10/9/2008)...ing Income Excluding Non-Cash Charges, SAN DIEGO,...Nasdaq:,CDIC), the innovator and leader of BioZ(R)...ported financial results for fiscal third quarter ...ompared with Third Quarter 2007 -- Net ICG sales ... -- International sales increased 35% to $690,000...
(Date:10/9/2008)...-FirstCall/ - Dr. Brad Thompson, President,and CEO...Y), will present a,corporate overview of the Compa...nce in London, U.K. on Monday, October 13 at 2 p.m...abeth II Conference Centre from October,12-14, 200... a Calgary-based biotechnology company focused on ...
(Date:10/9/2008)... 2009 to meet continued listing criteria, ROCHEST...Scopics, Inc.,(Nasdaq: VSCP ) today announced tha...y,s request to remain listed on the Nasdaq Capital... 3, 2009 to regain compliance with the,minimum bid...xtent of the,Panel,s authority to grant an excepti...
Breaking Biology Technology:Dry adhesive based on carbon nanotubes gets stronger, with directional gripping ability 2Dry adhesive based on carbon nanotubes gets stronger, with directional gripping ability 3Dry adhesive based on carbon nanotubes gets stronger, with directional gripping ability 4CardioDynamics Reports Third Quarter 2008 Results, Seventh Consecutive Quarterly Revenue Growth and 15% Year to Date Revenue Increase 2CardioDynamics Reports Third Quarter 2008 Results, Seventh Consecutive Quarterly Revenue Growth and 15% Year to Date Revenue Increase 3CardioDynamics Reports Third Quarter 2008 Results, Seventh Consecutive Quarterly Revenue Growth and 15% Year to Date Revenue Increase 4CardioDynamics Reports Third Quarter 2008 Results, Seventh Consecutive Quarterly Revenue Growth and 15% Year to Date Revenue Increase 5CardioDynamics Reports Third Quarter 2008 Results, Seventh Consecutive Quarterly Revenue Growth and 15% Year to Date Revenue Increase 6Media Advisory - Oncolytics Biotech Inc. to Present at BioPartnering Europe 2Nasdaq Grants VirtualScopics' Request for Continued Listing 2Nasdaq Grants VirtualScopics' Request for Continued Listing 3
...A silencing , products available from... the <A , href="http://www...., href="http://www.ambion.com/catalog/...on Kit . While this kit is very cost effective whe...es need to be made, it can be , advan...
...-PCR on Sympathetic Neuron Lysates , , Sile...lidated siRNAs , , ...Neuron Lysates , Quantitative RT-PCR i... for measuring mRNA levels from small numbers of c...an be difficult when cell samples are , ...
... siRNA , Construction Kit uses ... column purification to prepare transfect...it, multiple siRNAs can be prepared in ~24 hours. ...iRNAs prepared by the , Silenc... in gene silencing studies. , ...
..., Wollheim CB , (2004) Synaptot... Ca 2+ -dependent insulin exocytosis. J Cell ,... In a recently published paper in the ...i and colleagues used Ambions , ...ctor in , an extensive study to...
Other Biology Technology:Your Data: Silencing of a Pro-apoptotic Transcription Factor Using Synthetic siRNA 2Your Data: Silencing of a Pro-apoptotic Transcription Factor Using Synthetic siRNA 3YOUR DATA: , Direct Real-time RT-PCR on Sympathetic Neuron Lysates, , Silencing of Focal Adhesion Kinases with Silencer Validated siRNAs 2YOUR DATA: , Direct Real-time RT-PCR on Sympathetic Neuron Lysates, , Silencing of Focal Adhesion Kinases with Silencer Validated siRNAs 3YOUR DATA: , Direct Real-time RT-PCR on Sympathetic Neuron Lysates, , Silencing of Focal Adhesion Kinases with Silencer Validated siRNAs 4YOUR DATA: , Direct Real-time RT-PCR on Sympathetic Neuron Lysates, , Silencing of Focal Adhesion Kinases with Silencer Validated siRNAs 5Your Data: Silencing Hepatitis C Virus Replication With In Vitro Transcribed siRNAs 2Your Data: Use of pSilencer 1.0-U6 siRNA Expression Vector in the Analysis of Synaptotagmin Location and Function 2Your Data: Use of pSilencer 1.0-U6 siRNA Expression Vector in the Analysis of Synaptotagmin Location and Function 3Your Data: Use of pSilencer 1.0-U6 siRNA Expression Vector in the Analysis of Synaptotagmin Location and Function 4
...lity ISO 9001:2000 Certified USDA Research Regist... Validated, SOP's Training AALAS Certified Techn...res GLP Documentation Upon Request Focus CRP is ...mmunology service needs. We offer free project co...
Request Info
IC50: 190 pg/ml · Limit of detection: 60 pg/ml
Request Info
Biology Products: