Navigation Links
Parents seen as critical stakeholders in expanding newborn screening
Date:6/20/2012

The first tier could include mandatory screening for conditions with established therapies and consensus on when treatment is necessary. A second tier, designated to less understood diseases, could be offered under a research protocol with active parental consent. This model was adopted by the Massachusetts Department of Public Health with the expansion of its newborn screening program in the 1990s.

Waggoner and Ross acknowledge that large-scale screening initiatives are needed to uncover the many unknowns regarding LSDs, yet they strongly oppose policies that allow research studies to operate under the guise of public health programs.

"The development of enzyme replacement and other innovative therapies for many LSDs is exciting and motivate the pursuit of IRB-approved research on populations that may benefit from early identification and treatment," Ross said. "But infants are vulnerable and need their guardians to determine whether participation is in their best interest. Let's give voice to all parents by requiring their permission for the enrollment of their children in experimental newborn screening protocols."


'/>"/>

Contact: Tiffani Washington
tiffani.washington@uchospitals.edu
773-702-5865
University of Chicago Medical Center
Source:Eurekalert

0

GOOD

Page: 1 2 3 4

Related biology news :

1. Parents say that healthy eating is challenging for youth who play sports
2. Starting a family does not encourage parents to eat healthier
3. CSHL researchers solve structure of human protein critical for silencing genes
4. Understanding the RNAi Reagents Market Overlap with Drug Discovery and Therapeutic Development is Critical for Pharmaceutical Leaders
5. Awake mental replay of past experiences critical for learning
6. Carnegie Mellon fluorescent biosensor reveals mechanism critical to immune system amplification
7. Researchers find critical regulator to tightly control deadly pulmonary fibrosis
8. LABS, Inc. Launches Suite of Next-Generation Test Offerings; Focuses on Expanding Complex Biologic Testing Portfolio in 2012
9. Study raises questions about use of anti-epilepsy drugs in newborns
10. Researchers discover first gene linked to missing spleen in newborns
11. Improving equine health: Research studies vaccinations to protect newborn foals
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/21/2013)... "place" is increasingly being considered in the management ... new resource that can help them recognize and ... places in their lives. , Place-Based Conservation: ... co-edited by the Pacific Northwest Research Station,s Linda ... to conservation. The book is published by Springer ...
(Date:5/21/2013)... found that a class of pharmaceuticals can both prevent ... drugs, known as "TSPO ligands," are currently used for ... effects of TSPO ligand in young adult mice when ... mice when pathology was quite severe," said lead researcher ... "TSPO ligand reduced measures of pathology and improved behavior ...
(Date:5/21/2013)... of Michigan Water Center today awarded 12 research ... restoration and protection efforts. , The two-year grants ... including efforts to track the remediation of harmful ... control non-native weedy plant invasions; study chromosomal damage ... to restoration activities. , The grants were awarded ...
Breaking Biology News(10 mins):Drugs found to both prevent and treat Alzheimer's disease in mice 2U-M Water Center awards $570K in Great Lakes restoration grants 2U-M Water Center awards $570K in Great Lakes restoration grants 3U-M Water Center awards $570K in Great Lakes restoration grants 4
... dawn of the biological sciences, mankind has struggled to ... animals the arthropods. Now, a team of researchers, ... the Natural History Museum of Los Angeles County (NHM), ... relationships among the arthropods, answering many questions that defied ...
... engineer at the University of WisconsinMilwaukee (UWM) can not ... cell will produce, but also foresee the outcome before ... by Andrew Cohen, an assistant professor of electrical engineering, ... will allow scientists to search for mechanisms that control ...
... Benjamin Franklin,s advice that "an ounce of prevention ... applied to today,s most pressing health issue: obesity. Because ... preventing the progression of weight gain throughout life, especially ... area of great interest is the possibility that being ...
Cached Biology News:Where did insects come from? 2Where did insects come from? 3UWM researcher predicts stem cell fate with software 2UWM researcher predicts stem cell fate with software 3Later introduction of baby foods related to lower risk of obesity later in life 2
(Date:5/22/2013)... Alton Housing Authority was hit by bed bugs. A ... their presence has already caused the company $35,000 for treatment. ... spending, My Cleaning Products shared a way how to ... the report that to clear the infestation , the ... employees also attended a mandatory training on bed bugs, it ...
(Date:5/22/2013)... -- Moderna Therapeutics, the pioneering company developing messenger RNA therapeutics™, ... in vivo production of therapeutic proteins, announced today ... Moderna in early July as its first Chief Information ... in the design and implementation of information systems underlying ... clinical operations and commercial preparedness. John has also been ...
(Date:5/21/2013)... May 21, 2013 Custom Learning ... reporting eLearning solution using Tin Can API combined ... tool. CLD is a leading developer of training ... device companies worldwide. , Tin Can API ... helps learners and trainers more accurately measure the ...
(Date:5/21/2013)... May 21, 2013 The congress ... Transplant Association) is the biggest congress in ... Nearly 10,000 participants are in Istanbul ... research findings. New pioneering studies have been presented: ... PYROPHOSPHATE (SFP) ADMINISTERED VIA HEMODIALYSATE REDUCES ESA USE" ...
Breaking Biology Technology:Bed Bugs Cost Alton Housing Authority $35,000; New Help, How to Kill Bed Bugs With Less Expense, Introduced by My Cleaning Products 2Industry Leader John Reynders Joins Moderna Therapeutics as Chief Information Officer 2Industry Leader John Reynders Joins Moderna Therapeutics as Chief Information Officer 3CLD Integrates Tin CAN API with its eLearning Solutions and Launches its Excelerometer Tracking Statement Dashboard 2CLD Integrates Tin CAN API with its eLearning Solutions and Launches its Excelerometer Tracking Statement Dashboard 3ERA-EDTA CONGRESS 2013: Late Breaking Clinical Trials 2ERA-EDTA CONGRESS 2013: Late Breaking Clinical Trials 3
... Stratagenes GeneConnection cDNA gene clusters are novel and more ... , Jason Goncalves Jean-Michel Lelias Joe Sorge ... YY ,goes beyond normal cDNA collections. Stratagene ... identified thousands of cDNAs that are not found ,in ...
... One column purification of protein with native amino ... Wyborski * John C. Bauer * Barbara McGowan ... Systems, Inc. , Stratagene has improved the Affinity ... the pCAL-n-EK vector. This E. coli,cloning and expression ...
... system provides quality images from,nanogram quantities of RNA , ... ,Stratagene , The SYBR Gold ... II still,video system, allows the integrity of only ... , In Stratagenes Custom Library Department, we often construct cDNA,libraries ...
Cached Biology Technology:The GeneZoo or the GeneJungle? 2The GeneZoo or the GeneJungle? 3The GeneZoo or the GeneJungle? 4The GeneZoo or the GeneJungle? 5The GeneZoo or the GeneJungle? 6The GeneZoo or the GeneJungle? 7The GeneZoo or the GeneJungle? 8The GeneZoo or the GeneJungle? 9The GeneZoo or the GeneJungle? 10Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 2Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 3Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 4Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 5Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 6Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 7Expression and Purification of Recombinant Proteins That Have Native Amino,Acid Sequence 8Improved Sensitivity for Staining RNA with SYBR Gold Stain 2Improved Sensitivity for Staining RNA with SYBR Gold Stain 3
Mouse Serpin F1/PEDF MAb (Clone 199315)...
Mouse Nodal Affinity Purified Polyclonal Ab...
Immunogen: Full length M32 fusion protein. Storage: -20 C, Avoid Freeze/Thaw Cycles...
Human TFPI Affinity Purified Polyclonal Ab Protein Family: Coagulation, Inflammation, Serine Protease Regulators...
Biology Products: