Navigation Links
New book gives a human face to children with congenital heart disease
Date:2/21/2008

COLD SPRING HARBOR, N.Y. Despite the fact that congenital heart disease (CHD) is the most common birth defect in the United States, pediatric cardiology receives relatively little attention compared to adult cardiology. But a new photodocumentary volume entitled My Heart vs. the Real World gives a human face to children with CHD. Through striking black-and-white photographs and interviews with CHD patients and their families, it shows how these children cope with day-to-day struggles and go on to lead fulfilling lives.

The author of the book, Max Gerber, is a CHD patient himself. I remember going to the doctors office when I was 8 or 9...and nobody ever looked like me, so it was a very isolating experience, Gerber says. He hopes that the images in his book will help CHD patients and their families realize that they are not alone.

Ten chapters each spotlight a single child. The photographs show the children engaging in day-to-day activities, visiting the doctor, and participating in special festivities such as birthday parties, weddings, vacations, graduations, and holiday celebrations. The images are accompanied by personal accounts from the children and family members.

With structural and developmental abnormalities that include heart valve defects and cardiac muscle deformities, children with CHD face their own mortality at a young age. They often struggle to fit in with other children while protecting their health. These photos reveal what our vision might fail to see: the remarkable persons behind the external scars, says Dr. Peter Guzy, a cardiologist and Clinical Professor of Medicine at UCLA.

In the introduction to the book, the author writes about his experiences growing up and living with CHD. An additional chapter focuses on Gerbers life and includes stories from his parents. A 12-minute slideshow and commentary by Gerber is at http://cshlpress.com/heart.

The Web site for My Heart vs. the Real World (www.heartkidsproject.org) is a blog/message forum for families and children with CHD. It also includes images and excerpts from the book to increase awareness of CHD in the general public.

Max Gerber gives us an as-yet-unseen glimpse into the hearts and minds of children and young adults who are growing up with congenital heart defects, explains Mona Barmash, President of the Congenital Heart Information Network. The hauntingly beautiful photography accurately portrays the thought provoking reality of their experience.

The author intends to donate a portion of his proceeds from the sale of the book to charities serving pediatric heart patients.


'/>"/>

Contact: Ingrid Benirschke
benirsch@cshl.edu
619-275-6021
Cold Spring Harbor Laboratory
Source:Eurekalert  

Related biology news :

1. UBC discovery unlocks tree genetics, gives new hope for pine beetle defense
2. Gene regulation, not just genes, is what sets humans apart
3. Antioxidant overload may underlie a heritable human disease
4. Facial attraction -- choice of sexual partner shaped the human face
5. Humans fostering forest-destroying disease
6. SRMs track fire retardants in humans and environment
7. St. Jude influenza survey uncovers key differences between bird flu and human flu
8. Human derived stem cells can repair rat hearts damaged by heart attack
9. Influence of sex and handedness on brain is similar in capuchin monkeys and humans
10. Gene regulation in humans is closer than expected to simple organisms
11. Pittsburgh scientists identify human source of stem cells with potential to repair muscle
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
New book gives a human face to children with congenital heart disease
(Date:3/30/2017)... -- On April 6-7, 2017, Sequencing.com will host the world,s ... at Microsoft,s headquarters in Redmond, Washington ... health and wellness apps that provide a unique, personalized ... is the first hackathon for personal genomics and the ... the genomics, tech and health industries are sending teams ...
(Date:3/28/2017)... -- The report "Video Surveillance Market by ... Devices), Software (Video Analytics, VMS), and Service (VSaaS, Installation ... 2022", published by MarketsandMarkets, the market was valued at ... reach USD 75.64 Billion by 2022, at a CAGR ... considered for the study is 2016 and the forecast ...
(Date:3/23/2017)... -- The report "Gesture Recognition and Touchless Sensing Market by Technology ... Forecast to 2022", published by MarketsandMarkets, the market is expected to be worth ... and 2022. Continue Reading ... ... ...
Breaking Biology News(10 mins):
(Date:4/25/2017)... ... April 25, 2017 , ... ... of Common Lisp (CL) development tools, and market leader for Semantic Graph ... performance enhancements now available within the most effective system for developing and deploying ...
(Date:4/25/2017)... ... April 25, 2017 , ... Leaders of Quorum Review ... be featured in multiple sessions at this week’s Association of Clinical Research Professionals ... best practices in clinical research. , "We are excited to present subject matter expertise ...
(Date:4/21/2017)... ... April 21, 2017 , ... The University ... first round funding to three startups through the UConn Innovation Fund. The $1.5 ... business startups affiliated with UConn. , The UConn Innovation Fund provides investments of ...
(Date:4/20/2017)... ... April 20, 2017 , ... As ... webinar will explore challenging patient cases when screening for direct oral anticoagulant. When ... be a need for bridging parental anticoagulation especially for those at high risk ...
Breaking Biology Technology: