Navigation Links
New book gives a human face to children with congenital heart disease
Date:2/21/2008

COLD SPRING HARBOR, N.Y. Despite the fact that congenital heart disease (CHD) is the most common birth defect in the United States, pediatric cardiology receives relatively little attention compared to adult cardiology. But a new photodocumentary volume entitled My Heart vs. the Real World gives a human face to children with CHD. Through striking black-and-white photographs and interviews with CHD patients and their families, it shows how these children cope with day-to-day struggles and go on to lead fulfilling lives.

The author of the book, Max Gerber, is a CHD patient himself. I remember going to the doctors office when I was 8 or 9...and nobody ever looked like me, so it was a very isolating experience, Gerber says. He hopes that the images in his book will help CHD patients and their families realize that they are not alone.

Ten chapters each spotlight a single child. The photographs show the children engaging in day-to-day activities, visiting the doctor, and participating in special festivities such as birthday parties, weddings, vacations, graduations, and holiday celebrations. The images are accompanied by personal accounts from the children and family members.

With structural and developmental abnormalities that include heart valve defects and cardiac muscle deformities, children with CHD face their own mortality at a young age. They often struggle to fit in with other children while protecting their health. These photos reveal what our vision might fail to see: the remarkable persons behind the external scars, says Dr. Peter Guzy, a cardiologist and Clinical Professor of Medicine at UCLA.

In the introduction to the book, the author writes about his experiences growing up and living with CHD. An additional chapter focuses on Gerbers life and includes stories from his parents. A 12-minute slideshow and commentary by Gerber is at http://cshlpress.com/heart.

The Web site for My Heart vs. the Real World (www.heartkidsproject.org) is a blog/message forum for families and children with CHD. It also includes images and excerpts from the book to increase awareness of CHD in the general public.

Max Gerber gives us an as-yet-unseen glimpse into the hearts and minds of children and young adults who are growing up with congenital heart defects, explains Mona Barmash, President of the Congenital Heart Information Network. The hauntingly beautiful photography accurately portrays the thought provoking reality of their experience.

The author intends to donate a portion of his proceeds from the sale of the book to charities serving pediatric heart patients.


'/>"/>

Contact: Ingrid Benirschke
benirsch@cshl.edu
619-275-6021
Cold Spring Harbor Laboratory
Source:Eurekalert  

Related biology news :

1. UBC discovery unlocks tree genetics, gives new hope for pine beetle defense
2. Gene regulation, not just genes, is what sets humans apart
3. Antioxidant overload may underlie a heritable human disease
4. Facial attraction -- choice of sexual partner shaped the human face
5. Humans fostering forest-destroying disease
6. SRMs track fire retardants in humans and environment
7. St. Jude influenza survey uncovers key differences between bird flu and human flu
8. Human derived stem cells can repair rat hearts damaged by heart attack
9. Influence of sex and handedness on brain is similar in capuchin monkeys and humans
10. Gene regulation in humans is closer than expected to simple organisms
11. Pittsburgh scientists identify human source of stem cells with potential to repair muscle
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
New book gives a human face to children with congenital heart disease
(Date:5/3/2016)... , May 3, 2016  Neurotechnology, a ... the MegaMatcher Automated Biometric Identification System (ABIS) ... large-scale multi-biometric projects. MegaMatcher ABIS can process multiple ... using any combination of fingerprint, face or iris ... MegaMatcher SDK and MegaMatcher Accelerator , ...
(Date:4/28/2016)... 2016 First quarter 2016:   ... with the first quarter of 2015 The gross margin ... (loss: 18.8) and the operating margin was 40% (-13) ... Cash flow from operations was SEK 249.9 M (21.2) , ... unchanged, SEK 7,000-8,500 M. The operating margin for 2016 ...
(Date:4/26/2016)... 27, 2016 Research and ... Biometrics Market 2016-2020"  report to their offering.  , ... The analysts forecast the global multimodal biometrics ... during the period 2016-2020.  Multimodal biometrics ... such as the healthcare, BFSI, transportation, automotive, and ...
Breaking Biology News(10 mins):
(Date:6/27/2016)... June 27, 2016  Global demand for enzymes ... through 2020 to $7.2 billion.  This market includes ... cleaning products, biofuel production, animal feed, and other ... and biocatalysts). Food and beverages will remain the ... increasing consumption of products containing enzymes in developing ...
(Date:6/27/2016)... ... June 27, 2016 , ... ... findings on what they believe could be a new and helpful biomarker for ... research. Click here to read it now. , Biomarkers are components ...
(Date:6/27/2016)... , ... June 27, 2016 , ... ... for Amgen, will join the faculty of the University of North Carolina ... professor of strategy and entrepreneurship at UNC Kenan-Flagler, with a focus on the ...
(Date:6/24/2016)... , June 24, 2016  Regular discussions on a ... take place between the two entities said Poloz. ... Ottawa , he pointed to the country,s ... the federal government. ... said, "Both institutions have common economic goals, why not sit ...
Breaking Biology Technology: