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New Web site promotes interoperable newborn screening data
Date:9/15/2009

oad electronic datasets of standard names and identifiers for use in their systems.

"The Web site can also help researchers untangle the confusion of terms and tests that exist today," said Dr. Clem McDonald, director of NLM's Lister Hill National Center for Biomedical Communications. "But beyond research, the most important goal for the new Web site is to help bring about efficient electronic exchange of newborn screening information. The big gain for patients and providers will come when we can include this information in a child's permanent EHR."

The goal of the Newborn Screening Codes and Terminology Guide is to provide a standard framework for reporting the results of newborn screening tests whose contents can be accurately interpreted by recipient electronic systems for use in care, follow-up and analysis. This standard framework will also enable the use and comparison of data from different laboratories.

"For decades, the NLM has been a trailblazer in conducting and supporting research in clinical informatics and electronic medical records," said NLM Director Dr. Donald A.B. Lindberg. "Harmonizing standard coding, terminology and electronic messaging methods in newborn screening will support quality health care for children. Moreover, public health agencies will be better equipped to observe and compare nationwide trends from newborn screening test results, which will also support efforts of the biomedical research community at NIH and elsewhere to improve newborn screening methods and evaluation."


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Contact: Kathy Cravedi
cravedik@mail.nlm.nih.gov
301-496-6308
NIH/National Library of Medicine
Source:Eurekalert

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