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New NJIT book examines hemophilia and consequences of medical progress
Date:8/18/2011

ursuit entailed.

"I thought it was important to show readers the ironies as well as unintended consequences that are inherent to many of our ongoing efforts to manage disease," said Pemberton. "In the case of hemophilia, there was a collective effort to transform the patients' hopes for a normal life into a purchasable commodity. Ironically, this strategy made it all too easy for key actors and institutions in the United States to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men. Thus, in seeking normalcy, our medical experts and their allies produced the opposite of normal; and it was among the most vulnerable groups in America who paid the ultimate price for this mistake."

Pemberton is in the Federated Department of History at NJIT and Rutgers University, Newark. He is coauthor of The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease, also published by Johns Hopkins.


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Contact: Sheryl Weinstein
sheryl.m.weinstein@njit.edu
973-596-3436
New Jersey Institute of Technology
Source:Eurekalert  

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