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Need for federal protection against genetic discrimination
Date:3/24/2008

and benefits or employment.

The ACP research looked at a report done by the National Partnership for Women and Families on behalf of the Coalition for Genetic Fairness that documents how fears of genetic discrimination negatively impact patient health care and financial well-being, public health, and scientific advancements. Examples include shielding genetic information from health care providers, refusing genetic testing, or undergoing testing using an alias.

Two more ACP positions which consider insurers and employers are:

Position 4: Insurers and employers should be prohibited from requiring individuals and families to undergo genetic testing

Position 5: Insurers and employers should be prohibited from collecting and/or disclosing an individual or familys genetic information. Written and informed consent should be required for each disclosure of genetic information and should include to whom the disclosure is made.

Finally, ACP considered specific Congressional considerations:

Position 6: Congress should establish comprehensive and uniform federal protection against genetic discrimination that closes the gaps in protection due to varying state laws. Federal protection should also cover ERISA health plans.


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Contact: David Kinsman
dkinsman@acponline.org
202-261-4554
American College of Physicians
Source:Eurekalert

Page: 1 2

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