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NHGRI funds new Centers for Excellence in Ethical, Legal and Social Implications Research
Date:10/10/2007

al or public health practice.

  • University of Pennsylvanias Penn Center for ELSI Research
    Reed Pyeritz, M.D., Ph.D., $5.4 million

This center will concentrate on the ethical, legal, and social factors associated with genetic technologies, such as genetic testing, with the potential to generate uncertainty and confusion among patients, relatives, doctors and health insurers. The overall goal of the Penn Center for ELSI Research is to develop tools that will help educate consumers, professionals, policy makers and insurers understand and cope with the certainty or uncertainty of results from genetic technologies.

Team members will conduct original research to explore issues related to uncertainty, including an historical analysis of the ethical, legal, and social consequences of prenatal testing; an assessment of patient and provider perceptions of the barriers and utility of using a preventive genetic test to identify the likelihood of future disease susceptibility; and an evaluation of the long-term psychological, social, and medical effects of genetic testing and counseling for breast cancer on African American women and their families.


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Contact: Geoff Spencer
spencerg@mail.nih.gov
301-402-0911
NIH/National Human Genome Research Institute
Source:Eurekalert

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