Navigation Links
Most states unclear about storage, use of babies' blood samples, new study finds
Date:3/28/2011

of Health agreed to destroy more than 5 million samples that dated back to 2002, and a valuable research resource was lost.

"The destruction of those residual samples demonstrates the damage that can be done to the research enterprise if there is a public perception that states are using the samples for purposes other than that for which they were collected," Lewis says.

"I think some of the parents involved would have consented to the use of their baby's dried blood samples for research if they had been asked. These parents felt that their rights had been violated by not having been asked," Lewis added. "Even if the state did not intend to deceive the parents, there was a perception that the state was being deceptive, and this perception was damaging to the research enterprise."

The researchers agree that public discussion about the storage and use of newborn blood samples is vital, because people are becoming ever more aware that such specimens contain precise, identifying information about their children. People also realize that research is increasingly able to yield valuable information from biological specimens.

"Part of the issue is that some parents are concerned that the state or private companies could profit from the use of their children's blood sample," Lewis says.

Although no state addresses all of these issues in a comprehensive manner, Lewis pointed to South Carolina as one that had more robust policies in place with respect to the information that must be provided to parents. There, state law requires that parents be told that they can ask that their babies' blood samples not be used for research purposes.

"As states move forward in consideration of these issues," Lewis concluded, "it is vital that state policies regarding the retention and use of residual samples not undermine the public's trust in state newborn screening programsso that these programs can continue to protect the health of our
'/>"/>

Contact: Michael Pena
mpena@jhu.edu
410-614-5381
Johns Hopkins Medical Institutions
Source:Eurekalert

Page: 1 2 3 4

Related biology news :

1. Paradigm Tactical Products to be Largest Distributor of Metal/Radiation Detection Wands in United States
2. Urea tanks on diesel trucks -- thats the law in the United States starting in 2010
3. States expand newborn screening for life-threatening disorders
4. K-State researchers help Epitopix license the United States first E. coli O157 vaccine for cattle
5. Scientists find that individuals in vegetative states can learn
6. The impact of the diffusion of maize to the Southwestern United States
7. Montana State, partners in 6 states consider converting invasive plants to fuel
8. Forest Service and partners to conduct longleaf pine-carbon research on military bases in 3 states
9. States now fund majority of human embryonic stem cell research
10. Unclear regulations obstacle to biological diversity
11. Reseachers predict larger-than-average Gulf dead zone; impact of oil spill unclear
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/11/2014)... 2014  That blood pressure plays a role in human ... the medical term for high blood pressure – was first ... inflatable cuff that,s used in measuring blood pressure was invented ... new about hypertension, its triggers and its effects. In fact, ... and the best ways to treat it. For ...
(Date:12/10/2014)... 9, 2014  Valencell, a leader in performance biometric ... staggering demand from its licensees for highly accurate, clinically ... not solely coming from fitness and health sectors, but ... "A wearable is only as useful as the biometric ... ultimate driver in long-term mass consumer adoption of wearable ...
(Date:12/10/2014)... Research and Markets ( http://www.researchandmarkets.com/research/xclcvw/biometrics_market ... "Biometrics Market in Japan 2014-2018" report to ... The integration of biometrics and ... and upgradation of the driver,s license is one ... Besides the aforementioned projects, biometrics is being used ...
Breaking Biology News(10 mins):Research points to need for new approaches to treatment of high blood pressure 2Research points to need for new approaches to treatment of high blood pressure 3Research points to need for new approaches to treatment of high blood pressure 4Wearable Technology Products Demand Highly Accurate Biometric Technology 2Biometrics Market in Japan 2014-2018: Key Vendors are DDS, Fujitsu, Hitachi and NEC 2
... sole proprietors of their nests, some tropical species time ... a 150-year-old evolutionary mystery, says Queens University Biology professor ... confirms one of Charles Darwins more controversial theories ... many experts that different species can arise, unhindered, ...
... The Shifting Baselines Toolset is presented to the public and ... , When: Public symposium 1pm to 5:15pm, Wednesday 14th November ... city campus. , The meeting will be launched with a ... for interviews on the 14th and on other days by ...
... 13, 2007) A major study that will provide a ... be conducted by the La Jolla Institute for Allergy ... The five-year study, funded by the National Institute ... National Institutes of Health, could lead to revolutionary new ...
Cached Biology News:'Time-sharing' tropical birds key to evolutionary mystery 2How much fish have we got? 2How much fish have we got? 3NIH selects LIAI for major study on allergy molecular causes and possible treatments 2NIH selects LIAI for major study on allergy molecular causes and possible treatments 3NIH selects LIAI for major study on allergy molecular causes and possible treatments 4
(Date:12/22/2014)... Dec. 22, 2014  ( www.competitivehealth.com ) — Competitive ... medical bill review and advocacy service, has signed an ... WellCard Savings discount health services marketplace. 63% ... more than they expected to pay. As part of ... costs, WellCard Savings is pleased to offer medical bill ...
(Date:12/22/2014)... 22, 2014 Fertility Associates of Memphis ... Bank USA , a network of more than 20 ... partnership, patients have fast access to a national pool ... IVF . Fertility Associates of Memphis is the only ... treatment option. , Dr. William Kutteh , director ...
(Date:12/19/2014)... BioPlus Specialty Pharmacy (BioPlus), one ... of Nick Maroulis, Pharm.D. to the newly created position ... In this position, Dr. Maroulis will continue to manage ... of our multi-site pharmacies as the company expands. Dr. ... that time he has served in many different capacities ...
(Date:12/19/2014)... Dec. 19, 2014 Bina Technologies, Inc. (Bina, ... that they have been acquired by Roche (SIX: RO, ... privately held company that provides a big data platform ... (NGS) data for the academic and translational research markets. ... and will continue to focus on development of their ...
Breaking Biology Technology:WellCard Savings Announces CoPatient Medical Bill Review Service for Members 2Fertility Associates of Memphis Announces Partnership with Donor Egg Bank USA 2Fertility Associates of Memphis Announces Partnership with Donor Egg Bank USA 3BioPlus Specialty Pharmacy Promotes Dr. Nick Maroulis to Vice President of Specialty Pharmacy Services 2Bina Technologies is acquired by Roche. 2Bina Technologies is acquired by Roche. 3
... Aligns Operations for Enhanced Performance, DECATUR, ... (NYSE: ADM ) chairman, chief executive ... organizational restructure of the,Company, designed to enhance ... responsibility for long-term success. The reorganization creates ...
... oximetry technology to significantly reduce, false alarms without missing ... ... Aug. 22 Masimo (Nasdaq:,MASI), the inventor of Pulse CO-Oximetry ... partnership with Apria,Healthcare to provide pulse oximetry products and accessories ...
... symbol: SBS, - Canadian Biotechnology Company confirms commercial ... AI Milano variant and clarifies status of native ... - SemBioSys Genetics Inc.,(TSX:SBS), a biotechnology company developing ... diseases, today updated a release,issued on July 12, ...
Cached Biology Technology:ADM Reorganizes Operations 2ADM Reorganizes Operations 3ADM Reorganizes Operations 4Apria Healthcare Chooses Masimo SET Pulse Oximetry for Use in the Company's Home Health Care Business 2Apria Healthcare Chooses Masimo SET Pulse Oximetry for Use in the Company's Home Health Care Business 3SemBioSys updates Apo AI development program 2SemBioSys updates Apo AI development program 3SemBioSys updates Apo AI development program 4
Human ROR1 Affinity Purified Polyclonal Ab...
Ultra-sensitive, non-radioactive measurement of COX-I and COX-II activity...
Phospho-p70 S6 Kinase (T229) Affinity Purified PAb...
Recombinant Ovine (Sheep) Growth Hormone, Ultra Pure...
Biology Products: