Navigation Links
Keeping DNA 'all in the family'
Date:10/6/2009

Scientists look for clues about therapies and cures for life-threatening childhood illnesses in children's DNA -- it seems only logical to do so. But the decision as to who should have access to DNA samples from children provides a unique ethical conundrum, says a Tel Aviv University researcher in a recent publication for the esteemed journal Science, co-authored by colleagues from The Netherlands and Canada. The recommendations, which call for new policies on access to biobanked children's DNA, could shape America's legislation on the issue in the coming years.

With his co-authors, Dr. David Gurwitz, director of the National Laboratory for the Genetics of Israeli Populations (NLGIP) in the Department of Human Molecular Genetics and Biochemistry at TAU, explains that we cannot be aware today of future implications of widely distributing personal genetic information. In the wrong hands it could lead to unforeseen privacy risks. And since children cannot give consent to research on their DNA, they argue, population biobanks (including the National Children's Study planned at the U.S. National Institutes of Health) should not distribute DNA samples from children to outside researchers not before certain fail-safe checks are in place.

In-house research can be performed at the biobanks, they suggest, and the data published with sufficient protections, so that pediatric research is not seriously impaired or delayed. This approach gives maximal protections against the misuse of individual genetic data from non-consenting children, they write in Science. Additional measures could include encoding the critical data sets of polymorphic genetic sequences an argument presented recently and one which Dr. Gurwitz agrees could be among the measures for protecting the privacy of DNA donors.

Weighing society against privacy

The recommendations are not written-in-stone, Dr. Gurwitz warns, but it's important that deci
'/>"/>

Contact: George Hunka
ghunka@aftau.org
212-742-9070
American Friends of Tel Aviv University
Source:Eurekalert  

Page: 1 2 3

Related biology news :

1. New keys to keeping a diverse planet
2. Case Western Reserve University study looks at keeping migrant workers children healthy
3. Keeping an eye on the surroundings
4. A second career for a growth factor receptor: keeping nerve axons on target
5. Keeping chromosomes from cuddling up
6. Wistar scientists find key to keeping killer T cells in prime shape for fighting infection, cancer
7. Researchers unzip molecules to measure interactions keeping DNA packed in cells
8. Keeping golf courses green when fresh water is limited
9. Study on keeping nuclear bombs from US ports shows misplaced fear over cargo scanning cost
10. Study: Young Arctic muskoxen better at keeping warm than scientists thought
11. Family conditions may affect when girls experience puberty
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Keeping DNA 'all in the family'
(Date:6/15/2015)... , June 15, 2015 A new ... Telstra reveals the majority of US consumers using mobile banking ... biometrics, such as fingerprint and voiceprint, instead of having to ... According to Telstra,s " Mobile Identity   -   The ... report, with smartphones now the primary channel used by Gen ...
(Date:6/12/2015)... -- Securus Technologies, a leading provider of civil and ... corrections and monitoring, announced the United States Patent ... and identify participants of a video visitation session ... system can: , Identify that the ... process is actually the person participating in the ...
(Date:6/10/2015)... , June 10, 2015 ... "3D Sensor Market by Technology (Ultrasound, TOF, Structured ... (consumer Electronics, Entertainment, Automotive) and by Geography - ... by MarketsandMarkets, the market is expected to reach ... of 25.51% between 2015 and 2020. ...
Breaking Biology News(10 mins):One in Four US Consumers Would Share Their DNA With Their Bank to Secure Financial and Personal Information, Telstra Report Finds 2One in Four US Consumers Would Share Their DNA With Their Bank to Secure Financial and Personal Information, Telstra Report Finds 3One in Four US Consumers Would Share Their DNA With Their Bank to Secure Financial and Personal Information, Telstra Report Finds 4Securus Announces Patent Issued for Authorized Presence Verification During Video Visitation 23D Sensor Market Worth $3,319.71 Million by 2020 23D Sensor Market Worth $3,319.71 Million by 2020 33D Sensor Market Worth $3,319.71 Million by 2020 4
... Technology (NIST) and the Weill Cornell Medical College have designed ... of deadly human virusesthink decoys with teeth. The technique offers ... in detail the mechanism by which viruses attack cells, and ... antiviral drugs. A new paper* details how the novel ...
... that inserted itself into the human genome thousands of years ... disease amyotrophic lateral sclerosis (ALS), also known as Lou Gherig,s ... give researchers a new way to attack this universally fatal ... to have a genetic cause, the vast majority of cases ...
... consumption of a healthful antioxidant substance in apples extends the ... percent. The new results, obtained with fruit flies stand-ins ... bolster similar findings on apple antioxidants in other animal tests. ... Food Chemistry . Zhen-Yu Chen and colleagues note that ...
Cached Biology News:Using artificial, cell-like 'honey pots' to entrap deadly viruses 2New study suggests ALS could be caused by a retrovirus 2
(Date:7/6/2015)... LOS ANGELES , July 6, 2015 ... the establishment of an agreement with Novella Clinical ... of ICT-107 in patients with newly diagnosed glioblastoma. Novella ... clinical trial services to small to mid-sized oncology companies. ... clinical sites in the US, Europe ...
(Date:7/3/2015)... July 3, 2015 ... verkossa osoitteessa  http://www.openinnovationinscience.at Wienissä ... in Science" -jatkokoulutusohjelmaan 22.7.2015 asti.  ... (LBG) tekemän, kansainvälisiä tutkijoita ja ... kaksi suurinta haastetta ovat kannustimien ...
(Date:7/3/2015)... 2015 Forskare kan ... på  http://www.openinnovationinscience.at till det återkommande utbildningsprogrammet ... hålls i Wien .  ... internationella forskare och vetenskapsmän som genomfördes av ... största utmaningar bristen på incitament för att ...
(Date:7/3/2015)... 3, 2015 Forskere ... 2015 på  http://www.openinnovationinscience.at om efteruddannelsesprogrammet "Lab ... sted i Wien .  ... internationale forskere og videnskabsmænd foretaget af Ludwig ... udfordringer for sundhedsvidenskaben manglen på incitamenter til ...
Breaking Biology Technology:ImmunoCellular Therapeutics Establishes Agreement with Novella Clinical to Conduct ICT-107 Phase 3 Registration Trial in Glioblastoma 2Maailman ensimmäinen tiedemiesten koulutukseen suunniteltu avoimen innovaation ohjelma käynnistyy 2Maailman ensimmäinen tiedemiesten koulutukseen suunniteltu avoimen innovaation ohjelma käynnistyy 3Lansering av världens första program för öppen innovation för att utbilda forskare 2Lansering av världens första program för öppen innovation för att utbilda forskare 3Lancering af verdens første åbne innovationsprogram til uddannelse af forskere 2Lancering af verdens første åbne innovationsprogram til uddannelse af forskere 3
... ... Capital,s client Neuren Pharmaceuticals Ltd (ASX:NEU) has agreed an AU$6.7 mil convertible note private ... as Neuren,s exclusive placement agent and advisor. , ... New York (PRWEB) November 23, 2009 -- The independent ...
... ... deCODE,genetics, Inc. (Nasdaq: DCGN ) today announced that it has ... common stock will be,suspended as of November 30, 2009 and a ... will remove deCODE,s common stock,from listing on Nasdaq, unless the company ...
... ... deCODE,genetics, Inc. (Nasdaq: DCGN ) today announced the approval of all of ... Delaware,(the "Bankruptcy Court"). deCODE last week filed a voluntary petition for,relief under ... The orders issued by the Bankruptcy Court allow ...
Cached Biology Technology:KTA Capital Arranges an AU$6.7 Million Private Placement by Neuren Pharmaceuticals 2deCODE Receives Delisting Notice From Nasdaq, Plans to Appeal 2deCODE Receives Delisting Notice From Nasdaq, Plans to Appeal 3deCODE genetics, Inc. Announces Approval of First Day Motions by Bankruptcy Court 2deCODE genetics, Inc. Announces Approval of First Day Motions by Bankruptcy Court 3