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It Takes Brains: Autism BrainNet registration site launches
Date:5/16/2014

ng, Ph.D. "The launch of Autism BrainNet enables us to continue this mission and expand the number of available collection sites and represents an unprecedented investment ensuring that researchers have access to the brain tissue they need to answer the big questions about autism."

Educating families affected by autism is essential to growing Autism BrainNet's tissue resources quickly. It Takes Brains, Autism BrainNet's outreach program, encourages families affected by the disorder to register with Autism BrainNet in the event brain tissue donation is someday relevant to their family. Registrants will receive updates about the ongoing progress of Autism BrainNet.

"My 16-year-old son, Grayson, was a brain tissue donor," says BrainNet family participant Valerie Hund of Livermore, California. "I would encourage any family to register to be donors. Although we could not have anticipated losing our son to a seizure, for us, in that moment, we gave back and did something that felt right not even knowing that brain tissue is so in demand. So now Grayson can be a pioneer in helping make this next quantum leap in research. Out of something bad, something good came about."

"Most people think brain tissue is included when you register as an organ donor, but it's not," said Alison Singer, president of the Autism Science Foundation. "Every family raising a child with autism needs to think about registering to donate brain tissue in case of a tragedy. Brain tissue research is the best hope we have for understanding what causes autism and developing new and better treatments for individuals with autism."


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Contact: Steffanie Marchese
steffanie.marchese@autismspeaks.org
646-385-8537
Autism Speaks
Source:Eurekalert

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