Navigation Links
International patient alliance to fund Spanish Friedreich's ataxia gene-therapy project
Date:1/28/2014

Barcelona, Tuesday 28 January 2014.- The gene therapy-based research project to tackle Friedreich's ataxia launched in November in labs at the Institute for Research in Biomedicine (IRB), in Barcelona, and the "Centro de Biologa Molecular Severo Ochoa" (CBMSO), in Madrid, has received 100,000 US$ per year for two years from the Friedreich's Ataxia Research Alliance (FARA). FARA is one of the main patients' organisations in the United States and since 1998 it has provided a rigorous and solid funding programme for research projects all over the world that aim to tackle Friedreich's ataxia, a rare and serious hereditary neurodegenerative disease for which only palliative treatments are currently available.

The peculiarity is that the idea of the project came from those affected by the disease, patients and relatives, who, in their endeavours to find a cure got in touch with basic research groups in order to start a long-term project. The GENEFA Platform, in close collaboration with FEDAES and the BabelFAmily, started fund-raising efforts in May 2013, and in November signed an agreement with IRB and CMBSO, headed by Joan Guinovart, director of the IRB, and Margarita Salas, president of the "Fundacin Severo Ochoa".

"The monthly subscriptions of members of the GENEFA Platform form the basis of the funding; however, the organisation has also held a wide range of fund-raising events and activities and has been supported by donations from companies, associations, and relatives and friends of those affected by Friedreich's ataxia. We are all working hard towards finding a cure and now the collaboration of FARA guarantees the funding required for this purpose," explains Juan Carlos Baiges, on behalf of the members of the Platform.

The project involves the research groups headed by Javier Daz-Nido at the CBMSO, an international expert in gene therapy and Friedreich's ataxia, and Ernest Giralt at IRB, an international authority on the design of t
'/>"/>

Contact: Sònia Armengou
armengou@irbbarcelona.org
34-934-037-255
Institute for Research in Biomedicine (IRB Barcelona)
Source:Eurekalert  

Page: 1 2

Related biology news :

1. Island Biology 2014: An International Conference on Island Evolution, Ecology, and Conservation
2. FASEB announces 2014 Science Research Conference: 2nd International Conference on Retinoids
3. International experts swarm to London for bee health summit
4. International deal to screen potential cancer drugs using DNA barcodes
5. The International Society for Stem Cell Research announces its 2014 award recipients
6. Story of human regeneration wins international physics journalism prize
7. CROS NT Ltd Announces Acquisition of MDSL International Ltd.
8. EcoHealth Alliance and Bat Conservation International forge partnership to work on global bat conservation and public health issues
9. International team completes systematic, genomic study of cervical cancer
10. World e-waste map reveals national volumes, international flows
11. First International Bioenergy Conference brings together world-leading experts
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
International patient alliance to fund Spanish Friedreich's ataxia gene-therapy project
(Date:1/22/2015)... MELBOURNE, Fla. , Jan. 13, 2015  Today, ... wearable technology, launched its crowdfunding campaign on Fundable, ... accelerate the build of production capacity to meet ... Photo - http://photos.prnewswire.com/prnh/20150113/168790 ...
(Date:1/22/2015)... POINT ROBERTS, Washington , January 20, 2015 ... sectors including technology and tech stocks, releases video from the ... pickpocket and security consultant Apollo Robbins . ... about the Wocket™ biometric smart wallet, a product of NXT-ID, ...
(Date:1/22/2015)... N.C. , Jan. 22, 2015 Infinisource has launched ... of the G2 model. The G2 sets a higher standard ... iSolved human capital management solution. With plug-and-play installation, touch screen ... time clock provides a robust time collection solution for the ...
Breaking Biology News(10 mins):FreeWavz Launches on Fundable to Drive Speed-to-Market in 2015 2Apollo Robbins Talks about the Illusion of Personal Safety and How Easily Your Wallet is Stolen; If a Wocket Wallet is Stolen the Thief Can't do Anything With it! 2Apollo Robbins Talks about the Illusion of Personal Safety and How Easily Your Wallet is Stolen; If a Wocket Wallet is Stolen the Thief Can't do Anything With it! 3Infinisource's NXG series sets new time clock standard 2
... high levels of antibodies against the Epstein-Barr virus, the ... likely to develop multiple sclerosis 15 to 20 years ... will appear in the June 2006 print issue of ... Researchers have long suspected that external factors may influence ...
... Researchers at MIT have found a new way of ... determine whether fish populations are shrinking. , A remote ... mechanical engineering, along with others at MIT, Northeastern University ... enormous fish populations, or shoals, as well as small ...
... keep a protein "watchdog" on high alert to stop hereditary ... it on a leash of just the right length. , ... University's Susan M. Mendrysa has found that one of the ... the progression of intestinal tumors that arise from genetic predisposition. ...
Cached Biology News:Big hips, big belly? It's in your genes, Joslin-led study shows 2One fish, two fish: New MIT sensor improves fish counts 2Loosen leash on cancer protein 'watchdog,' researchers say 2Loosen leash on cancer protein 'watchdog,' researchers say 3Loosen leash on cancer protein 'watchdog,' researchers say 4
(Date:1/22/2015)... January 22, 2015 zFlo Motion , ... to announce an exciting product from a new partner. ... solutions over the past 15 years, with offerings in the ... their 3D IMU system (inertial measurement unit), iSen, is opening ...
(Date:1/22/2015)... Diagenode, Inc., a leading global ... and complete solutions for epigenetics research, recently launched ... the need for manual processing. The new ChIPettor ... of histones or transcription factors and a semi-automated ...
(Date:1/22/2015)... 22, 2015   GenoSpace , a precision medicine software company ... the broad use of genomic, imaging and other biomedical data ... Michelle Munson , CEO of Aspera, an IBM Company, ... - http://photos.prnewswire.com/prnh/20150122/170713 "We are pleased ...
(Date:12/24/2014)... and NEW YORK , Dec. ... biopharmaceutical company advancing patient care in critical areas, announced the ... common stock, and warrants to purchase up to an aggregate ... $4.00 per share and $.01 per warrant.  The warrants have ...
Breaking Biology Technology:3D Motion Capture Just Got Easy 2Diagenode Launches Unique Semi-Automated Solution for Chromatin Immunoprecipitation 2GenoSpace Expands Board with Appointment of Michelle Munson 2PlasmaTech Biopharmaceuticals, Inc. Announces Closing of Public Offering 2PlasmaTech Biopharmaceuticals, Inc. Announces Closing of Public Offering 3
... , Introduction ... paralyzed by a defective electron-galvanizing (EV) bath line. Because ... fundamental to productivity, quality, and identification of errors, a ... error and contribute to selecting the best solution. Both ...
... Kristin Prasauckas, , Kelly Carter-Allen ... PerkinElmer Life Sciences, Inc. , ... technology is a highly sensitive, non-isotopic homogenous assay method developed ... developed two instruments for the detection of AlphaScreen reagents. The AlphaQuest-HTS system ...
... Introduction , ... to several disease states, including anxiety, depression or schizophrenia. Extensive ... action of various transmitters, in order to understand and combat ... its receptor alters the production of the second messenger adenosine ...
Cached Biology Technology:Characterizing galvanizing baths 2Characterizing galvanizing baths 3Comparison of Performance between the AlphaQuest - HTS and the Fusion α Multilabel Reader for Detection of cAMP 2Comparison of Performance between the AlphaQuest - HTS and the Fusion α Multilabel Reader for Detection of cAMP 3Comparison of Performance between the AlphaQuest - HTS and the Fusion α Multilabel Reader for Detection of cAMP 4In Vitro Measurement of the Second Messenger cAMP: RIA vs. FlashPlate 2In Vitro Measurement of the Second Messenger cAMP: RIA vs. FlashPlate 3In Vitro Measurement of the Second Messenger cAMP: RIA vs. FlashPlate 4
Rabbit polyclonal to TetR ( Abpromise for all tested applications). Antigen: Synthetic peptide: AQKLGVEQPTLYWHVKNKR, corresponding to amino acids 31 - 49 of TetR...
Biotin anti-mouse Ly-49C/F/I/H...
Peptide-affinity Purified Polyclonal Antibody to Retinoic Acid-Induced 3 (RAI3/RAIG1)...
NF kappa B Related Sampler Kit 10g each...
Biology Products: