Navigation Links
Hope among patients with ALS may take a variety of forms
Date:3/27/2008

New Rochelle, NY, March 27, 2008 -Sustaining hope in the face of a chronic, debilitating illness such as amyotrophic lateral sclerosis (ALS) should be a goal of palliative care and can take many forms, representing a continuum from focusing on the self to concern for others, as described in a paper published in the April issue (Volume 8, Number 3) of Journal of Palliative Medicine (www.liebertpub.com/jpm), a peer-reviewed publication of Mary Ann Liebert, Inc (www.liebertpub.com). The paper is available free online.

The concept of hope can be affected by a variety of internal and external factors, and can impact an individual's psychological and physical health. Based on interviews with 16 individuals with ALS, Joanna H. Fanos, from the Department of Pediatrics, Dartmouth Medical School (Lebanon, NH), Deborah F. Gelinas, from the Department of Neurology, Nashoba Valley Medical Center (Ayer, MA), Reed S. Foster, from the Department of Psychological & Brain Sciences, Dartmouth College (Hanover, NH), and Norman Postone and Robert Gordon Miller, from California Pacific Medical Center (San Francisco, CA), explored the concept of hope in chronic disease and how palliative care providers can help initiate discussions aimed at promoting hopefulness.

The patients with ALS, a progressive degenerative motor neuron disease that is almost always fatal demonstrated a range of coping capabilities unrelated to the extent of their physical disability. Several themes of hope emerged, along a continuum from narcissism to altruism: hope for a cure; social support; search for information; spiritual beliefs; limiting the impact; adapting to changing capacities; living in the moment; and self-transcendence.

"ALS is a terminal illness from the day of diagnosis; what role can and should hope have in providing palliative care for these patients" Too many health professionals think that promoting hopefulness can only be achieved by withholding the truth. Asking the patients themselves what hopefulness means to them leads to a more nuanced definition," says Charles F. von Gunten, MD, PhD, Editor-in-Chief of the journal.


'/>"/>

Contact: Vicki Cohn
vcohn@liebertpub.com
914-740-2156
Mary Ann Liebert, Inc./Genetic Engineering News
Source:Eurekalert

Related biology news :

1. Human Proteinpedia, a portal to share human protein data among the scientific community
2. Key impact hunters catalyze hunting among male chimpanzees
3. UT Southwestern scientist honored among best in Texas research
4. U of M research finds disordered eating less common among teen girls who regularly eat family meals
5. Varying prevalence among ethnic groups of gene mutation that increases risk of breast cancer
6. Tree of life for flowering plants reveals relationships among major groups
7. Misconceptions about Alzheimers varies among races, survey suggests
8. Survey finds elevated rates of new asthma among WTC rescue and recovery workers
9. BARACLUDE data show low resistance over 5 years in nucleoside-naive hepatitis B patients
10. Gene therapy protocol at UCSD activates immune system in patients with leukemia
11. Smart holograms help patients help themselves
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/28/2017)... 2017   Acuant , a leading provider of ... enhancements to new and core technologies building upon the ... mobile and desktop Acuant FRM TM facial recognition ... real time manual review of identity documents by accredited ... fastest and most accurate capture software to streamline workflows ...
(Date:2/28/2017)... Spanien, 27. Februar 2017  EyeLock LLC, ein marktführendes ... seine erstklassige biometrische Lösung zur Iris-Erkennung auf ... X16 LTE auf dem Mobile World Congress ... Qualcomm-Stand in Halle 3, Stand 3E10, vorstellen. ... Sicherheitsplattform Qualcomm Haven™ – eine Kombination aus ...
(Date:2/26/2017)... -- Securus Technologies, a leading provider of civil and ... corrections and monitoring, announces the appointment of a ... often, too many offenders return to jail or ... to tackle this ongoing problem and improve the ... significant steps are underway, Securus continues to invest ...
Breaking Biology News(10 mins):
(Date:3/29/2017)... , March 29, 2017 "Surging application ... deployed by the government are expected to drive the ... The gesture recognition market is expected to be ... CAGR of 29.63% between 2017 and 2022. The touchless ... billion by 2022, growing at a CAGR of 17.44% ...
(Date:3/29/2017)... ... March 29, 2017 , ... ComplianceOnline, the leading governance, risk and compliance advisory ... Medical Device Summit 2017 venue and speaker lineup. The Summit will take place on ... , The Omni Parker House Hotel, which is located at 60 School Street, Boston, ...
(Date:3/29/2017)... DC (PRWEB) , ... March 29, 2017 , ... ... announced today that it is exhibiting in booth 513 at the Association of ... Washington, DC Downtown Hotel, March 29-31. , CANCERSCAPE unites key stakeholders from ...
(Date:3/29/2017)... GeneNews Limited (TSX:GEN) ("GeneNews" or the "Company") announced today ... test for breast cancer, via its Virginia ... a blood-based biomarker test with a sophisticated algorithm to determine ... ... BreastSentry measures the fasting plasma levels of two biomarkers in ...
Breaking Biology Technology: