Navigation Links
Hope among patients with ALS may take a variety of forms
Date:3/27/2008

New Rochelle, NY, March 27, 2008 -Sustaining hope in the face of a chronic, debilitating illness such as amyotrophic lateral sclerosis (ALS) should be a goal of palliative care and can take many forms, representing a continuum from focusing on the self to concern for others, as described in a paper published in the April issue (Volume 8, Number 3) of Journal of Palliative Medicine (www.liebertpub.com/jpm), a peer-reviewed publication of Mary Ann Liebert, Inc (www.liebertpub.com). The paper is available free online.

The concept of hope can be affected by a variety of internal and external factors, and can impact an individual's psychological and physical health. Based on interviews with 16 individuals with ALS, Joanna H. Fanos, from the Department of Pediatrics, Dartmouth Medical School (Lebanon, NH), Deborah F. Gelinas, from the Department of Neurology, Nashoba Valley Medical Center (Ayer, MA), Reed S. Foster, from the Department of Psychological & Brain Sciences, Dartmouth College (Hanover, NH), and Norman Postone and Robert Gordon Miller, from California Pacific Medical Center (San Francisco, CA), explored the concept of hope in chronic disease and how palliative care providers can help initiate discussions aimed at promoting hopefulness.

The patients with ALS, a progressive degenerative motor neuron disease that is almost always fatal demonstrated a range of coping capabilities unrelated to the extent of their physical disability. Several themes of hope emerged, along a continuum from narcissism to altruism: hope for a cure; social support; search for information; spiritual beliefs; limiting the impact; adapting to changing capacities; living in the moment; and self-transcendence.

"ALS is a terminal illness from the day of diagnosis; what role can and should hope have in providing palliative care for these patients" Too many health professionals think that promoting hopefulness can only be achieved by withholding the truth. Asking the patients themselves what hopefulness means to them leads to a more nuanced definition," says Charles F. von Gunten, MD, PhD, Editor-in-Chief of the journal.


'/>"/>

Contact: Vicki Cohn
vcohn@liebertpub.com
914-740-2156
Mary Ann Liebert, Inc./Genetic Engineering News
Source:Eurekalert

Related biology news :

1. Human Proteinpedia, a portal to share human protein data among the scientific community
2. Key impact hunters catalyze hunting among male chimpanzees
3. UT Southwestern scientist honored among best in Texas research
4. U of M research finds disordered eating less common among teen girls who regularly eat family meals
5. Varying prevalence among ethnic groups of gene mutation that increases risk of breast cancer
6. Tree of life for flowering plants reveals relationships among major groups
7. Misconceptions about Alzheimers varies among races, survey suggests
8. Survey finds elevated rates of new asthma among WTC rescue and recovery workers
9. BARACLUDE data show low resistance over 5 years in nucleoside-naive hepatitis B patients
10. Gene therapy protocol at UCSD activates immune system in patients with leukemia
11. Smart holograms help patients help themselves
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/16/2017)... -- Veratad Technologies, LLC ( www.veratad.com ), an innovative and ... solutions, announced today they will participate as a sponsor ... May 17, 2017, in Washington D.C.,s ... Identity impacts the lives of billions of ... digital world, defining identity is critical to nearly every ...
(Date:4/19/2017)... 19, 2017 The global military ... is marked by the presence of several large global ... by five major players - 3M Cogent, NEC Corporation, ... for nearly 61% of the global military biometric market ... the global military biometrics market boast global presence, which ...
(Date:4/13/2017)... 13, 2017 According to a new market research ... Analytics, Identity Administration, and Authorization), Service, Authentication Type, Deployment Mode, Vertical, and ... is expected to grow from USD 14.30 Billion in 2017 to USD ... 17.3%. ... MarketsandMarkets Logo ...
Breaking Biology News(10 mins):
(Date:10/11/2017)... ... 11, 2017 , ... At its national board meeting in ... Sheikh, the co-founder, CEO and chief research scientist of Minnesota-based Advanced Space Technology ... in ARCS Alumni Hall of Fame . ASTER Labs is a technology ...
(Date:10/11/2017)... (PRWEB) , ... October 11, 2017 , ... ComplianceOnline’s Medical ... place on 7th and 8th June 2018 in San Francisco, CA. The Summit brings ... well as several distinguished CEOs, board directors and government officials from around the world ...
(Date:10/11/2017)... LAGUNA HILLS, Calif. , Oct. 11, 2017 /PRNewswire/ ... London (ICR) and University of ... tool to risk-stratify patients with multiple myeloma (MM), in a ... . The University of Leeds is ... Myeloma UK, and ICR will perform the testing services to ...
(Date:10/11/2017)... (PRWEB) , ... October 11, 2017 , ... ... Administration (FDA) has granted orphan drug designation to SBT-100, its novel anti-STAT3 (Signal ... the treatment of osteosarcoma. SBT-100 is able to cross the cell membrane and ...
Breaking Biology Technology: