Navigation Links
Grant to fund research into psychosocial impacts of epilepsy testing
Date:2/28/2012

If you carried a gene that increased your risk of having an epileptic seizure, would you want to know? Do perceptions of stigma and discrimination against people with epilepsy affect interest in genetic testing for the disease?

Sara Shostak, assistant professor in the department of sociology, along with principal investigator Ruth Ottman, professor of epidemiology at Columbia University, and other collaborators were recently awarded a $2 million grant from The National Institute of Neurological Disorders and Stroke (NINDS) to learn more about these questions.

Ottman and Shostak have been working together since Shostak was a post-doctoral fellow in the RWJ Health & Society Scholars Program at Columbia. The new project will build on research they started in 2006, results of which were published in the September issue of Social Science and Medicine in the article "What's at stake? Genetic information from the perspective of people with epilepsy and their family members."

In their new research, a survey and clinical genetic testing will take place at Columbia and in-depth qualitative interviews and analysis will be done under a $200,000 subcontract at Brandeis.

While genetic testing is available for several epilepsy syndromes, Shostak says, very little data has been produced on the psychosocial impact of genetic information on people with epilepsy and their families. Research in this area is urgently needed, she says, because of the many challenges that come along with epilepsy, which, historically, have included severe stigma and discrimination. People with epilepsy report lower rates of marriage and reproduction and reduced health-related quality of life.

Currently approximately 25 genes have been associated with specific epilepsy syndromes. Shostak and Ottman's team will focus on autosomal dominant partial epilepsy with auditory features (ADPEAF).

"The intention of the in-depth interviews is to explore, in
'/>"/>

Contact: Susan Chaityn Lebovits
lebovits@brandeis.edu
781-736-4027
Brandeis University
Source:Eurekalert

Page: 1 2 3

Related biology news :

1. Exciting new companies at NJITs small biz incubator get 100K in grants
2. Broad Institute awarded major grant to bolster epigenomics research
3. Entertainment Software Association Foundation awards grant to FAS for immune attack
4. National Science Foundation grants Clemson professors award to develop nanoprobes
5. Dunn Foundation gives Rice $3M for collaborative research grants
6. National Science Foundation grant expands UMCES oyster research
7. Penn State receives new NASA astrobiology grant
8. BIO-key(R) Granted Additional Patent for Biometric Security Solution
9. FSU researchers discovery leads to $1.5 million grant, potential new treatment of liver fibrosis
10. Northwest climate change is target of $3.2M in grants to University of Oregon
11. UT Southwestern researcher awarded Gates Foundation grant for novel vaccine development
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:8/21/2014)... American singles found that during sex with a ... On average, men experience orgasm 85.1 percent of ... difference. For women, however, orgasm occurrence is less ... of the time during sex with a familiar ... sexual orientation, with lesbian women experiencing orgasm more ...
(Date:8/21/2014)... 2014 /PRNewswire-iReach/ -- LiveScan Service Provider  Binary ... a partnership with Gabriel Health Institute, one of ... Certified Nursing Assistant preparatory schools. The agreement ... member of Binary,s LiveScan service provider,s owner/operator team; ... its service capabilities by widening the service ...
(Date:8/21/2014)... window? It consists of radiations in the 3.3 to ... water in biological tissues. New theoretical findings show that ... water window. These could be the basis of an ... biological samples or to be used in high-precision spectroscopy. ... needed to efficiently generate the harmonic radiationswhich are multiples ...
Breaking Biology News(10 mins):Orgasm rates for single women less predictable than men's, vary by sexual orientation 2Orgasm rates for single women less predictable than men's, vary by sexual orientation 3Orgasm rates for single women less predictable than men's, vary by sexual orientation 4LiveScan Provider Binary Biometrics Announces Partnership with Preeminent CNA School, Gabriel Health Institute to Expand Services in Orlando Region 2LiveScan Provider Binary Biometrics Announces Partnership with Preeminent CNA School, Gabriel Health Institute to Expand Services in Orlando Region 3Water window imaging opportunity 2
... dynamic world of the developing brain, neural stem cells give ... newborn neurons then migrate along the stem cell fibers up ... scientists have discovered a key mechanism of this migration ... developmental processes and diseases, including cancer. The finding, ...
... the much larger marsupial thylacine by being better built ... large prey, say Australian scientists. Despite being armed ... larger energy needs than the dingo, the thylacine was ... stronger head and neck anatomy allowed it to subdue ...
... BOSTON (Sept. 5, 2007) Steady increases in ... decades, as well as rates of Type 2 ... Mayer USDA Human Nutrition Research Center on Aging ... explore the relationship between sugar-sweetened beverage consumption and ...
Cached Biology News:Neural stem cell study reveals mechanism that may play role in cancer 2Neural stem cell study reveals mechanism that may play role in cancer 3Neural stem cell study reveals mechanism that may play role in cancer 4Tassie tiger no match for dingo 2Sugary drinks, not fruit juice, may be linked to insulin 2Sugary drinks, not fruit juice, may be linked to insulin 3
(Date:8/21/2014)... , Aug. 21, 2014  China Cord Blood Corporation (NYSE: ... plan to release financial results for the first quarter ... after market close in the US.  ... a.m. ET on Friday, August 29, 2014 to discuss ... the Company,s recent developments, followed by a question and ...
(Date:8/21/2014)... August 21, 2014 Gallus ... contract development and manufacturing organization (CMO) announced today ... Inc., an oncology company focused on the development ... to manufacture the anti-prostate specific membrane antigen (PSMA) ... candidate. Under the agreement the antibody will ...
(Date:8/20/2014)... patented university inventions licensed to biotechnology firms has ... To open these roadblocks, the researchers suggest that ... discovery stage could lead to faster commercialization down ... from discoveries made in university laboratories and licensed ... clinical trials, which have a high failure rate. ...
(Date:8/20/2014)... (PRWEB) August 20, 2014 High ... and apply the most complete climate and Earth ... demanding climate change issues. , Eight national laboratories, ... with the National Center for Atmospheric Research, four ... new effort. Other participating national laboratories include Argonne, ...
Breaking Biology Technology:China Cord Blood Corporation to Report First Quarter of Fiscal 2015 Financial Results 2Gallus Enters Agreement with Progenics Pharmaceuticals, Inc. for Manufacture of Anti-PSMA Monoclonal Antibody 2Gallus Enters Agreement with Progenics Pharmaceuticals, Inc. for Manufacture of Anti-PSMA Monoclonal Antibody 3Early bottlenecks in developing biopharmaceutical products delay commercialization 2Early bottlenecks in developing biopharmaceutical products delay commercialization 3New Project Is the ACME of Addressing Climate Change 2New Project Is the ACME of Addressing Climate Change 3
... Systems, Inc (OTC: OMCM.OB) today announced that it ranked ... of 500 of the fastest growing technology, media, telecommunications, ... Rankings are based on the percentage of fiscal year ... 445 percent during this period. OmniComm,s CEO, ...
... Beating the flu is already tough, but it has become even ... so that two antiviral drugs don,t slow it down anymore. ... Florida State and Brigham Young move closer to understanding why not, ... how it changes. The two drugs, amantadine and rimantadine, are ...
... and existing in the limbo between a solid and a ... efficiency of chemical catalysts that can create better nanoparticles or ... transitional state, a catalyst can achieve its utmost potential with ... to a pair of Duke University researchers. A catalyst is ...
Cached Biology Technology:OmniComm Ranks Number 220 on Deloitte's 2010 Technology Fast 500 for Fastest Growing Companies in North America 2OmniComm Ranks Number 220 on Deloitte's 2010 Technology Fast 500 for Fastest Growing Companies in North America 3Putting a bull's-eye on the flu: Detailing influenza's structure for drug targeting 2Smaller is better in the viscous zone 2