Navigation Links
Children's Memorial Hospital of Chicago receives a grant from BioMarin to support adult PKU outreach
Date:7/21/2008

Chicago, IL, Children's Memorial Hospital of Chicago announced today that it has received a grant from BioMarin Pharmaceutical Inc. to support its Adult Phenylketonuria (PKU) Outreach Education Project. The goal of the program is to conduct outreach to PKU patients who are no longer being treated at PKU clinics to encourage them to return for further education about recent developments in the management and treatment of PKU.

"According to our records, approximately 250 PKU patients are not currently being seen in our clinic on a regular basis. This illustrates the magnitude of the problem and suggests that there may be as many patients currently outside the healthcare system as there are receiving care," said Barbara Burton, M.D., Director, PKU and Metabolic Disease Clinic, Children's Memorial Hospital, Chicago. "Untreated PKU can have severe neurological implications, including impaired cognitive function, mood disorders, mental illness and brain damage. Through specific targeting efforts, we hope to reach out to patients who are not receiving care to educate them about new options and advances in the treatment of PKU so that they can learn to manage and possibly avoid the severe neurological implications associated with untreated disease."

The goal of the project is to connect with each PKU and hyperphe patient not currently receiving care and encourage them to attend educational sessions arranged by Children's Memorial on the treatment of PKU and maternal PKU. The program will also identify additional outreach strategies that are most effective in reaching adult PKU patients who can benefit from new management guidelines and techniques.

"We are very pleased to provide this grant to Children's Memorial Hospital in support of this pilot program," said Steve Aselage, Senior Vice President of Global Commercial Development at BioMarin. "It's an important campaign and we applaud Dr. Burton and her team for proactively reaching out to these patients to bring them back to the clinic to receive the medical care they deserve."


'/>"/>

Contact: Julie Pesch
jpesch@childrensmemorial.org
773-880-3055
Children's Memorial Hospital
Source:Eurekalert

Related biology news :

1. Researchers at Sarasota Memorial Health Care System to study airway bypass treatment for emphysema
2. Northwestern Memorial trial may wean kidney transplant patients off antirejection drugs
3. Study finds environmental tests help predict hospital-acquired Legionnaires disease risk
4. Seattle Childrens Hospital leads $23.7 million NIH grant to study gene repair
5. 3 out of 4 hospital patients suffer from malnutrition regardless of their pathology
6. Nationwide Childrens Hospital involved in expanded access program for treatment of PKU
7. Childrens Hospital studying drug with the potential to prevent/delay onset of type 1 diabetes
8. Pennsylvania Hospital surgeon receives grant to develop molecular cardiac surgery
9. Childrens Hospital neurosurgeon receives grant
10. Pennsylvania Hospital recognized for excellence in bariatric surgery
11. Texas Hospital nations first to use large-scale cocoon strategy against whooping cough
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/24/2017)... Janice Kephart , former 9/11 ... Partners, LLP (IdSP) , today issues the following ... March 6, 2017 Executive Order: Protecting the ... be instilled with greater confidence, enabling the reactivation ... applications are suspended by until at least July ...
(Date:4/13/2017)... 13, 2017 UBM,s Advanced Design and Manufacturing ... feature emerging and evolving technology through its 3D Printing ... run alongside the expo portion of the event and ... demonstrations focused on trending topics within 3D printing and ... manufacturing event will take place June 13-15, 2017 at the ...
(Date:4/11/2017)... No two people are believed to ... York University Tandon School of Engineering and Michigan ... partial similarities between prints are common enough that ... and other electronic devices can be more vulnerable ... in the fact that fingerprint-based authentication systems feature ...
Breaking Biology News(10 mins):
(Date:9/20/2017)... ... September 20, 2017 , ... From industry leaders, sports stars, and Hollywood ... failed. Many of these people had lost all hope. Their stories are ... Download (pdf) , “Neil takes readers on a riveting journey through the ...
(Date:9/19/2017)... Charleston, SC (PRWEB) , ... September 19, 2017 ... ... Express, safely and accurately automates the most dangerous step of sample prep for ... digestion system to provide automation at an affordable price. The system is ideal ...
(Date:9/19/2017)... Poway, CA (PRWEB) , ... September 19, 2017 , ... VetStem Biopharma ’s CEO ... H. Riordan PA, PhD in Riordan’s new book "Stem Cell Therapy: A Rising Tide". ... past 14 years. They bonded over an interest in the potential of stem cell ...
(Date:9/19/2017)... FRANCISCO , Sept. 19, 2017 ValGenesis ... Solutions (VLMS) is pleased to announce the strategic partnership ... to provide clients with validation services using the latest ... partner, VTI will provide clients with efficient and cost-effective ... a marketing partner for the ValGenesis VLMS system. ...
Breaking Biology Technology: