Navigation Links
Children's Memorial Hospital of Chicago receives a grant from BioMarin to support adult PKU outreach
Date:7/21/2008

Chicago, IL, Children's Memorial Hospital of Chicago announced today that it has received a grant from BioMarin Pharmaceutical Inc. to support its Adult Phenylketonuria (PKU) Outreach Education Project. The goal of the program is to conduct outreach to PKU patients who are no longer being treated at PKU clinics to encourage them to return for further education about recent developments in the management and treatment of PKU.

"According to our records, approximately 250 PKU patients are not currently being seen in our clinic on a regular basis. This illustrates the magnitude of the problem and suggests that there may be as many patients currently outside the healthcare system as there are receiving care," said Barbara Burton, M.D., Director, PKU and Metabolic Disease Clinic, Children's Memorial Hospital, Chicago. "Untreated PKU can have severe neurological implications, including impaired cognitive function, mood disorders, mental illness and brain damage. Through specific targeting efforts, we hope to reach out to patients who are not receiving care to educate them about new options and advances in the treatment of PKU so that they can learn to manage and possibly avoid the severe neurological implications associated with untreated disease."

The goal of the project is to connect with each PKU and hyperphe patient not currently receiving care and encourage them to attend educational sessions arranged by Children's Memorial on the treatment of PKU and maternal PKU. The program will also identify additional outreach strategies that are most effective in reaching adult PKU patients who can benefit from new management guidelines and techniques.

"We are very pleased to provide this grant to Children's Memorial Hospital in support of this pilot program," said Steve Aselage, Senior Vice President of Global Commercial Development at BioMarin. "It's an important campaign and we applaud Dr. Burton and her team for proactively reaching out to these patients to bring them back to the clinic to receive the medical care they deserve."


'/>"/>

Contact: Julie Pesch
jpesch@childrensmemorial.org
773-880-3055
Children's Memorial Hospital
Source:Eurekalert

Related biology news :

1. Researchers at Sarasota Memorial Health Care System to study airway bypass treatment for emphysema
2. Northwestern Memorial trial may wean kidney transplant patients off antirejection drugs
3. Study finds environmental tests help predict hospital-acquired Legionnaires disease risk
4. Seattle Childrens Hospital leads $23.7 million NIH grant to study gene repair
5. 3 out of 4 hospital patients suffer from malnutrition regardless of their pathology
6. Nationwide Childrens Hospital involved in expanded access program for treatment of PKU
7. Childrens Hospital studying drug with the potential to prevent/delay onset of type 1 diabetes
8. Pennsylvania Hospital surgeon receives grant to develop molecular cardiac surgery
9. Childrens Hospital neurosurgeon receives grant
10. Pennsylvania Hospital recognized for excellence in bariatric surgery
11. Texas Hospital nations first to use large-scale cocoon strategy against whooping cough
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:3/15/2016)... --> --> ... Research "Digital Door Lock Systems Market - Global Industry Analysis, ... global digital door lock systems market in terms of revenue ... forecast to grow at a CAGR of 31.8% during the ... enterprises (MSMEs) across the world and high industrial activity driving ...
(Date:3/11/2016)... March 11, 2016 --> ... research report "Image Recognition Market by Technology (Pattern Recognition), ... Advertising), by Deployment Type (On-Premises and Cloud), by Industry ... published by MarketsandMarkets, the global market is expected to ... 29.98 Billion by 2020, at a CAGR of 19.1%. ...
(Date:3/9/2016)... GARDENS, Fla. , March 9, 2016 /PRNewswire/ ... management authentication and enrollment solutions, today announced the ... DigitalPersona ® Altus multi-factor authentication platform. ... and InfoSec managers to step-up security where it,s ... Washington, DC . ...
Breaking Biology News(10 mins):
(Date:4/27/2016)... MIAMI (PRWEB) , ... April 27, 2016 , ... ... joined the GSCG Advisory Board. Ross is the founder of GSCG affiliate Kimera Labs ... of Miami, where he studied hematopoietic stem cell transplantation for hematologic disorders and the ...
(Date:4/27/2016)... ReportsnReports.com adds 2016 global ... on US, EU, China ... healthcare business intelligence collection of its growing online ... on the Flow Cytometry market spread across 153 ... tables and figures is now available at ...
(Date:4/26/2016)... , ... April 26, 2016 , ... The European ... been selected as one of three finalists for the European Inventor Award 2016 in ... innovation prize will be announced at a ceremony in Lisbon on June 9th. , ...
(Date:4/26/2016)... ... ... This unique "Fertility Happy Hour" event will be held at The Saguaro Hotel ... on female fertility and the reproductive technologies that are empowering a new generation of ... The Arizona Center, will give a short presentation and answer questions about age ...
Breaking Biology Technology: