Navigation Links
2-way street
Date:1/24/2014

Scientists have called for data held in biobanks to be made accessible to the people donating material and data to them. In a paper published today in Science, Jeantine Lunshof and George Church from Harvard Medical School and Barbara Prainsack from King's College London write that donors should have unrestricted access to data derived from their own material and that advanced technology means allowing such access is today a question of will rather than feasibility.

Databanks containing information and biological materials from individuals are a crucial resource for medical and other research. Currently, data held in such biobanks are accessible only to researchers and not to the individuals who contributed the samples and data. Lunshof, Church and Prainsack argue that people donating material and data to biobanks should also have access to their own raw data.

Prainsack, reader (associate professor) in the Department of Social Science, Health & Medicine at King's, said, "We believe there are compelling ethical reasons for enabling donors to access the raw data derived from their material deposited in any kind of repository. Providing access to the data that are derived directly from the sample, before analysis and interpretation, recognizes the donor's agency in at least three ways: freedom to decide (if they wish to access data), option of independent analysis and informed decision about participation.

"Although we use biobanks as an example in our paper, our argument is applicable in principle to all contexts of database-based research. There is a crucial difference between providing access to data and returning findings. The possibility for research participants to access their raw data is a basic requirement for a just and reciprocal relationship, establishing at least a basic symmetry between those who donate and those who use data for their research."

Lunshof, Marie Curie Fellow in the HMS Department of G
'/>"/>

Contact: Anna Mitchell
anna.i.mitchell@kcl.ac.uk
44-075-454-22544
King's College London
Source:Eurekalert  

Page: 1 2

Related biology news :

1. 2-way traffic enable proteins to get where needed, avoid disease
2. Molecular 2-way radio directs nerve cell branching and connectivity
3. Medbox Positions Itself as the Leader on Wall Street in the Legalized Marijuana Industry
4. A new method for measuring the flow of traffic a street has to bear by measuring atmospheric noise
5. Green plants reduce city street pollution up to 8 times more than previously believed
6. Not a 1-way street: Evolution shapes environment of Connecticut lakes
7. Medbox, Inc. Announces Top-Tier Rating by Dun & Bradstreet Credibility Corporation
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
2-way street
(Date:7/11/2014)... 3, 2014, Shenzhen, China Researchers from Salk Institute ... the first time evaluated the safety and reliability ... successfully developed a new method, TALEN-HDAdV, which could ... stem cell (hiPSC). This study published online in ... theoretical foundation for stem cell-based gene therapy. , ...
(Date:7/11/2014)... 2014 The increased risk of kidney injury related ... fluids reflects the mass of HES molecules, according to ... journal of the International Anesthesia Research Society (IARS). , ... effect of HES on cultured human renal proximal tubule ... Wunder and colleagues of University Hospital Wrzburg, Austria. ...
(Date:7/11/2014)... 11, 2014 Research and Markets ... Technology Market - Industry Analysis Size Share Growth Trends ... http://photos.prnewswire.com/prnh/20130307/600769 ... created a need for high level security in both ... authentication such as username and passwords, tokens etc. are ...
Breaking Biology News(10 mins):A new genome editing method brings the possibility of gene therapies closer to reality 2In lab studies, hydroxyethyl starch has direct harmful effects on kidney cells 2International Biometrics Technology Market - Industry Analysis Size Share Growth Trends and Forecast to 2019 2
... Academic Affairs John Wiecha, MD, MPH, in the Department ... Health (NIH) American Recovery & Reinvestment Act (ARRA) Challenge ... valued at more than $950,000 will fund a study ... diabetes. The health education will be conducted either ...
... years ago, vertebrates lacked the ability to chew their food. ... a flexible, fused basket of cartilage. This week, an ... the University of Colorado at Boulder published evidence that three ... development of jaws in higher vertebrates. The finding is ...
... adverts, the secret of fertility might not be eternal youth. ... Research at the Consejo Superior de Investigaciones Cientficas in Seville, ... have evolved to protect their seeds. His research is published ... Botany ( http://dx.doi.org/10.1093/aob/mcq160 ). Prof. Herrera said: "No ...
Cached Biology News:Wiecha receives grant to study face-to-face vs. virtual health education for African-American women 2Genetic clues to evolution of jaws in vertebrates unearthed by CU-led team 2
(Date:7/11/2014)... Fla. , July 11, 2014 /PRNewswire-iReach/ -- Maxim ... high-quality peptides that are used solely in scientific experiments, ... two successful years in business, Maxim Peptide, which was ... just launched a new and updated website that now ... blog section has been updated with fascinating articles about ...
(Date:7/11/2014)... 11, 2014 BCC Research ( http://www.bccresearch.com ... POLYMERASE CHAIN REACTION (PCR) TECHNOLOGY: GLOBAL MARKETS , the ... reached nearly $140 billion in 2013. This is estimated ... five-year compound annual growth rate (CAGR) of 28.6%. , ... interesting and exciting possibilities within the broader PCR field. ...
(Date:7/11/2014)... , July 11, 2014  Researchers have ... three-dimensional images. The new technology, called Virtual Finger, ... small structures like neurons and synapses using the ... unique technology makes 3D imaging studies orders of ... at an unprecedented level across many areas of ...
(Date:7/10/2014)... 10, 2014 Product and process ... low abundance and are often “lost in the ... , Join presenters Dr. Rowel Tobias, Senior Scientist, ... Anders, Head of Quality at Nanotherapeutics, Inc., to ... can speed detection and quantitation while achieving the ...
Breaking Biology Technology:Maxim Peptide Celebrates Second Anniversary Online with an Updated Website and Special Deals Section 2Global Market for Digital Polymerase Chain Reaction Technology to Reach $490 Billion by 2018; Equipment Sector Accounts for the Fastest Growing Segment With 33% CAGR 2Global Market for Digital Polymerase Chain Reaction Technology to Reach $490 Billion by 2018; Equipment Sector Accounts for the Fastest Growing Segment With 33% CAGR 3Virtual Finger Enables Scientists To Navigate And Analyze 3D Images Of Complex Biological Structures 2Virtual Finger Enables Scientists To Navigate And Analyze 3D Images Of Complex Biological Structures 3Novel Ms Techniques Speed Detection of Biopharmaceutical Product and Process Impurities, New Webinar Hosted by Xtalks 2
... Number of ... Jobseekers, ... device and diagnostics job board and career fair,company, will host the ... event will take place at the Minneapolis,Airport Marriott from 11 am ...
... The Board of,Directors of Baxter International Inc. (NYSE: ... share of Baxter common stock., This payment represents ... this year by 30 percent. This quarterly dividend is,payable ... of September 10,2008., Baxter International Inc. develops, manufactures ...
... Poniard,Pharmaceuticals, Inc. (Nasdaq: PARD ), a ... A. Martell, president and chief,operating officer, will participate ... will provide a corporate overview, including a discussion,of ... picoplatin,the Company,s lead product candidate., * Oppenheimer ...
Cached Biology Technology:DeviceSpace(TM) to Host Medical Device and Diagnostics Career Fair in Minneapolis 2Poniard Pharmaceuticals Announces Upcoming Conference Participation 2
... LABTrack provides a familiar interface ... collaboration, and warehousing. The transition from ... nearly transparent. LABTrack contains an ... forms and rules mechanism. These functions ...
... Major Science Major Science MS 300V ... power supply designed to meet most electrophoresis ... use unit. Major Science MS 300V power ... Current to instruments used in electrophoresis. 4 ...
... MAX POWER 500V Programmable Power Supply ... which can handle virtually any application ... current blotting. It is unique in ... The MAX POWER Programmable Power Supply ...
... Science Smart Minis 150V power supply (Cat. ... power supplies designed to meet most electrophoresis ... use unit. The Minis 150V power supply ... Minis Power Supply is designed for individuals ...
Biology Products: